Thursday, April 7, 2011

Attitudes on Genetic Testing for CD

Reposted in support of the work undertaken by the Celiac Disease Center at Columbia University. Please add to the understanding of perceptions within the celiac and gluten-free communities by completing this brief survey. Doing so assists reputable organizations in providing the very best information on Celiac disease and its proper diagnosis.

From: Cynthia Beckman [mailto:]
Sent: Wednesday, April 06, 2011 6:17 PM
To: 'Cynthia Beckman'
Subject: Research Study on Genetic Testing

If you or a family member have celiac disease or a gluten intolerance, I hope you will consider completing our online research survey. Details and the link follow.

The Celiac Disease Center at Columbia University invites you to participate in a research study looking at individuals' knowledge of genetic testing of celiac disease and their potential concerns with such testing. The goal of this study is to increase understanding of the factors associated with making an informed decision regarding such testing and to better provide the necessary information to make such a decision.

We have developed a brief survey to address some of these factors; it takes approximately 5 minutes to complete. The survey is anonymous; no identifying information is collected. If you agree to participate in this study, the online survey can be accessed through the link below.

If you have questions, please contact Michele Pallai at or (212) 305-5590.

Thank you very much for your time and consideration.

Cynthia Beckman
Director of Development
Celiac Disease Center at Columbia University
Harkness Pavilion
180 Fort Washington Avenue
Suite 934
New York, NY 10032
Tel 212.342.4529
Cell 646.812.1212
Fax 212.342.0447

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